Saturday, October 14, 2023

My cancer - "It can’t be true! It can’t, but it is."

 

Liver cancer.  That was a surprise.  I knew something was wrong, but I was not expecting that.

Since the diagnosis last summer, since it was known for a fact that I had something serious, things have moved fast.  It has been like boarding a train.  Once in motion there is no way off.  I guess I have seen plenty of movies where people get off of moving trains, often with bad results.  I am going to stay on and do what my doctors tell me.

Monday is my liver surgery, a major change of direction.  When I wake up, my tumor will be in the hands of the researcher who expressed almost too much interest in getting a look at it.  He can have it.  The subsequent year of immunotherapy treatment is to keep the tumor from returning.

I have great doubts about sharing personal information of any kind, much less medical information, with the internet, but my cancer is no secret in my real life, and I wanted to explain why the schedule of my Greek philosophy reading – no, not the reading, the writing – fell apart.  How fortunate to be reading Greek philosophy – Cynics, Stoics, and others – at just this time.  The perfect companions.  But my energy was not so good, and a lot of what was left went to health care appointments.  So, so many appointments.  My writing suffered, and will likely do so for some time.

My doctors, by the way, have been superb, as have the nurses, technicians, and everyone else.  The insurance company has behaved itself.  No medical horror stories, or even irritation stories, not yet.  My greatest suffering, at this point, has been the 900 calorie per day liver-softening diet that I am currently enduring, although not for long.  Have pity on this poor glutton.

Ivan Ilych, in “The Death of Ivan Ilych” (1886), worries about the cause of his illness.  The illness, which involves, the appendix, or maybe the kidney, sure sounds like cancer.  I wish he had had my doctors.  He once heavily bumped his side while hanging a curtain:

‘It really is so!  I lost my life over that curtain as I might have done when storming a fort.  Is that possible?  How terrible and how stupid.  It can’t be true!  It can’t, but it is.’  (Ch. VI, tr. revised Maudes)

Of course, however comforting it would be to know, poor Ilych has no idea.  I had a brief discussion with the surgeon about the cause of my cancer, ending in a shrug and a laugh.  Who knows?

Leo Tolstoy’s masterpiece is the only work on illness I have deliberately sought out.  I owe a debt, though, to Nanni Moretti’s 1993 anthology film Caro Diario, specifically to the extraordinary third part where he recreates his frustrating, circular experiences with the Italian medical system (which does save him in the end – he is now 70, with a new movie out).  It’s because of Moretti’s film, backed by some family history, that led me to push hard on my doctors to look for cancer.  “Be your own advocate” is the phrase people use.  Yes, do it.

I will be out of touch – out of everything – on Monday, and I have never been a recovering patient before so I have no idea when I might respond to any well wishes, kind thoughts, crackpot advice, or angry scoldings.  Many thanks, then, in advance for any of that.

Now back to the problem that makes me fret the  most: which books to bring to the hospital?

 

41 comments:

  1. All my best wishes for Monday, my friend - I feel I can call you that, after all these years knowing each other in this strange and special space we call "online." I am glad that as far as possible, things have gone right with this unwelcome "surprise" so far. Which books to bring - a challenge indeed. The ones you know and love best, perhaps, old friends you can trust. xo

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  2. I pray the procedure goes well and your recovery is swift! As for reading material... one comforting re-read and one challenging book would be my picks. :)

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  3. Thank you for sharing, Tom. May everything go well with your surgery and recovery. And may reading offer comfort, but understand that holding on to words might be a challenge for a while. When I came to my senses following a cardiac arrest several years ago I asked my son to bring the one title I had which I thought might be close to a police procedural which, to my relief, was actually much more than that. The month of my initial recovery was one of the most productive reading periods of my life. May you also find literary companionship in your convalescence.

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  4. The above "anonymous" comment is from me.

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  5. I am very shocked to hear this, and it goes without saying that I wish you the very best. You will most certainly be on my mind, and on many other peoples’ minds too, I’m sure.

    Recovery from major surgery is an arduous and tiresome affair - certainly if my own experience in that area is anything to go by - but I am sure you are prepared for that. In the meantime, I look forward to the time when you feel sufficently recovered to resume blogging.

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  6. Thanks for all this. The book advice is quite enjoyable. The constraints are tight - considerations of weight, size, what I own, difficulty. It is quite complicated. Subject, even - I have a copy of Daughter of Time, set in a hospital room, right here, but that is too spot on. I'll read it when I get home.

    When I leave the hospital I am not supposed to lift more than five pounds, so I should bring at least a book or two that I do not mind leaving behind.

    What nonsense, and on the other hand what a useful distraction.

    I do expect the recovery, both in the hospital and at home, to have difficulties I have not anticipated. This is not the time to finally read The Tale of Genji or anything like that.

    Again, I can hardly say how much I appreciate the kind thoughts.

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  7. Tom, I've been thinking of you off and on ever since first reading your hints that all was not well. Sending you thoughts, prayers, and best wishes for a swift recovery and continued good care (and good books).

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  8. Thank you, very kind. I guess I am ready to go.

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  9. I haven't been on my blog much but I was very surprised to see the title of your post in my blog roll. Keep a strong heart and a positive attitude. Doctors are all well and good, but there are come natural treatments which can be added to the conventional. This book is not a classic but the book Radical Remission is a great one to read and it helps to balance perspective. You will definitely be in my thoughts and prayers! 🙏

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  10. I am sorry to hear that your illness is cancer. I'm behind with my readings too, we had my partner's mum die, and a 21 year old, the son of a close friend. I was heartened to hear that you were being operated on on Monday. I had a word with a friend who was a cancer nurse and was the surgeon's nursing assistant in the first successful cancer operation. She went on to teach young nurses about cancer and it's treatment. She said that the liver was very good at recovering. So I am hopeful that you will have a complete recovery. I have my fingers crossed because although you are only known to me though this blog you are one of the rare online people who seem like a friend. Im wishing you the best of luck for Monday and hopes for a speedy recovery. By the way my friend is a 15 year survivor of brest cancer.

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  11. I will think of you tomorrow, and wish you well for the up coming immunotherapy. I am an omnivorous reader easily prone to tangents and infatuations. Your readings and insightful writings have meant much to me. Take your time and recover. I'll be more than satisfied with being able to explore your archive.

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  12. Will be thinking of you on Monday. When I've been in the hospital and recovering from surgery, I find that rereading is the best kind of reading. I like to reread children's books and Sherlock Holmes stories.

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  13. Many thanks for the kind thoughts and recommendations. Cleo, Claire, Simeon, Jeanne, it is much appreciated.

    I have Sherlock Holmes stories on my phone as my all-else-fails-I-don't-have-a-book backup.

    One thing I have learned is that although we still use the blanket term "cancer" doctors now understand that there are a thousand different diseases, each with its own treatments and issues. Some can be quickly cured, while others, well, others are really bad news. If I had gotten this diagnosis 30 or even 20 years ago I might not be so optimistic, but treatments have changed enormously. I wish Nanni Moretti had had my doctors, my technology.

    Still, my positive thoughts are much helped by all of your positive thoughts.

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  14. Tom, your writing has been one of the great comforts and pleasures in my life. I am so sorry to hear about your cancer, but your determination and thoughtful words are an inspiration to me.

    I am sure that whatever books you choose to bring to the hospital, you will choose very well, as you always do. And a man of your industry and ability will surely recover rapidly.

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  15. I too wish you a full recovery and recuperative reading.

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  16. Many, many thoughts, prayers, and well wishes for a very special person. Love, Mom

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  17. Hi Tom, thank you for sharing this with us. I'll be thinking of you tomorrow. I wish you a good recovery, and I'm happy there's no horror story with the insurance company because adding financial worries on top of health worries is a lot to take. Bon courage! Emma

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  18. Jean from Howling Frog here. All the best wishes for a good recovery and outcome. It's a rough road and I'm sorry to hear you're on it. I can't read anything challenging when sick so I'm all for the most juvenile of comfort reads.

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  19. If I were going to the hospital and thought I'd have the chance to read, I might bring a book of essays, a book of poetry, and a book of short stories. It probably wouldn't make much difference to me which book of each type I picked. Conan Doyle is a good fallback plan.

    I enjoyed the Greek philosophy overview; thanks for taking it on and writing up what you could. I mention in passing that I have had a soft spot for Aurelius since I was a teen, so it was nice to see him pass by.

    I'll light a candle for you tomorrow. It's the way of my people. And I look forward to the rest of your writing, for years to come.

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  20. What bad news... I hope all goes well tomorrow. As for books, I'd bring an old favorite. Best of luck! (Doug Skinner)

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  21. Ouch. That sucks. But it is true they can do a lot more than they could twenty years ago. Hope (and trust!) all will go well tomorrow.

    Rereading is the best reading I think for something like this.

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  22. Wishing you well on your procedure, Tom. Choosing what books to bring is a good conundrum. Not too funny as to split your sides. Not too serious either as to leave you on tenterhooks. -Rise

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  23. In 2020 after they cracked my chest for a quintuple bypass, I focused on what I could do: follow the advice of my cardiologist and heart surgeon's PA, do all the cardiac rehab they had on offer, exercise regularly, eat sensibly, get good sleep, and be vehemently dedicated about regulating my emotions (the Stoics helped). You mentioned "the researcher" so if you consented to be human subject in a study, you are my hero. I've sat on a board that reviews research protocols for many years and know that not so many people in your situation consent to be heroes (volunteers) in research studies. Thank you and my very best for your recovery and positive state of mind.

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  24. Hope the treatment goes well, and that you recover swiftly.

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  25. Surgery lasted 4 hours and the team leader said it went very well. I thought you might want to know.

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  26. Best wishes to you, I sincerely love and cherish this blog and all that it's taught me :)

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  27. Thinking of you, Tom. No doubt it's the copy of The Madness of Hercules tr. Gioia on my desk, but I'd already been thinking about all the things I've read thanks to you before I saw this news today. I'm relieved to hear (if that anonymous comment is you!) that the surgery went well

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  28. Hello, Tom, I hope today finds you healing and in good spirits. When your parents visited me on a Saturday in July they told me about this 'damncancer', yes, one word, with which you were plagued. Since then your dad has messaged me about the pre-surgery treatment and he is keeping me updated on your post-surgery. Who knew that a teacher from your teenage years would be following your progress years later. I have so enjoyed the Saturday visits in July from your parents as we spend hours telling stories and drinking wine. My very best wishes to you for a full recovery and future wellness and happiness.

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  29. Oh yes, reading material while a patient? I would choose the Transcendentalists, especially Emerson, Thoreau, and Whitman. Nuggets of wisdom digestible while being interrupted by the noises of a hospital.

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  30. Thanks for the update (I suspect it was Mom?) Hope that he's doing well and in good spirits!

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  31. I hope very much for a speedy recovery- over 15 years I have followed your posts.ten years ago I had three cardiac arrests and against great odds fully recovered.

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  32. Glad to hear the surgery was successful, and hope recovery goes well!

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  33. How pleasant to read all of these kind comments. I am home now, officially doing nothing, except reading, obviously. Nothing too heavy, and I mean that literally, describing the weight and bulk of the book itself.

    I am recovering. Thanks again for every comment. They are helpful. How enjoyable to see my eighth grade English teacher, one of the reasons this folly exists, appear - Mrs. Christensen, thank you!

    Major, yes, I am part of a clinical trial. My surgeon practically ordered me into it. He thinks it works. It has its negative aspects, but so far it in fact has worked. There will be another year of treatment aimed at blocking the return of the tumor (liver cancers return all too easily).

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  34. So sorry to hear of your health woes, Tom, but I'm very glad to hear that you're back home, resting, and seemingly in good spirits. Wishing you as speedy a recovery as possible (feel free to let me know if you'd like me to look for any books in Cambridge or Boston for you for your recuperation reading).

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  35. Thanks. I am well-stocked with books, heaven knows. But we should meet in Boston sometime,. now that we are almost neighbors.

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  36. I'm doing Stoic Week 2023. It's a free e-learning course, run by Modern Stoicism, where you can "Live like a Stoic for a Week". I doing it for the first time since 2015. It starts Monday, November 6

    To sign up, visit
    https://learn.modernstoicism.com/p/stoicweek2023

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  37. Fascinating. I am perhaps ready to be less of a Stoic, to complain a but more, but I wish you the best of luck.

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  38. I'm so glad you are home and cheerful. I'm hoping the next year of treatment goes well. I'm relieved you are back home.

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  39. Thanks for that. Yes, pretty cheerful, given all that has happened.

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  40. Oh, Tom. Oh, my friend. I surely was not expecting this news, as most assuredly you were not either. My arms around you, as I ponder what books might be most pleasing. xo

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